List of Actively Participating Specialists

The registry acknowledges and thanks the following professional users who actively contribute and validate patient-entered data. If you are a neuromuscular specialist participating in the registry but do not appear on this list, or if you wish to sign up, please contact the registry curator.

Country

Name

Centre

Austria

Dr Astrid Eisenkölbl

Kepler Universitätsklinikum GmbH

Belgium

Dr Nicolas Deconinck

Queen Fabiola Children's University Hospital

Germany

Dr Jessika Johannsen

Universitätsklinikum Hamburg-Eppendorf

Hungary

Dr Léna Szabó

Gyermekgyógyászati Klinika Semmelweis Egyetem

Netherlands

Dr Nicol Voermans

Radboud University Medical Centre

Netherlands

Dr Anneke van der Kooi

Acedemic Medical Centre, Amsterdam

Norway

Dr Magnhild Rasmussen

Oslo University Hospital 

Norway

Dr Kristin Ørstavik

Oslo University Hospital 

Poland

Dr Jennifer Castaneda

Instytut Matki i Dziecka

Portugal

Dr Manuela Santos

Centro Hospitalar Universitário de Santo António

Republic of Korea

Dr Hyung Jun Park

Gangnam Severance Hospital - Yonsei University

Singapore

Dr Stacey Tay

Khoo Teck Puat – National University Children's Medical Institute

Switzerland

Dr Dirk Fischer

Neurologie am Schlosspark

UK

Dr Anne-Marie Childs

Leeds Teaching Hospitals NHS Trust

UK

Dr Chiara Marini-Bettolo

The Newcastle Upon Tyne Hospitals NHS Foundation Trust

UK

Dr Anna Sarkozy

Dubowitz Neuromuscular Centre, Great Ormond Street Hospital, London

UK

Dr Deepa Krishnakumar

Addenbrookes Hospital

UK

Dr Emma Matthews

St George's University Hospitals NHS Foundation Trust

UK

Dr Volker Straub

The Newcastle Upon Tyne Hospitals NHS Foundation Trust

USA

Dr Reghan Foley

National Institute of Neurological Disorders and Stroke